MJP –
Kansas City, Missouri — Even though 12-year-old Brennen Goody’s dancing abilities on TikTok made him look like a performer, his true passion was athletics.
According to his mom Jackie Goody, he loved Mahomes and wanted to be a professional football or soccer player.
Her firstborn was characterized by her mother as kind, lively, entertaining, and exceptionally sympathetic.
“Every time we passed a homeless man, he would beg us to help him somehow—whether it be by giving him money, buying him food, or inviting him to stay at our house,” she ranted.
A few years ago, he ended up in the hospital due to a bug bite. His doctors sent him to hematology because they believed the bruises were strange.
They sent the family to genetics after their doctors failed to diagnose the problem. There, testing for Vascular Ehlers-Danlos Syndrome (VEDS) and a gene mutation were both confirmed. Due to its rarity, he did not receive a diagnosis until 2021, when he was 10 years old.
Because of how easily organs and blood vessels might burst due to the condition, the affected person’s body is very delicate and easily hurt. His head needed sutures after multiple trips to the emergency room.
Almost like tissue paper, [his skin] tore. His mother said that the reason his under-eye skin will become darker is because it is already rather thin.
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That was tough for the youngster because he or she enjoyed football and soccer. After much persuasion, Brennen’s parents removed him from contact sports and ensured that he see specialists regularly at Children’s Mery.
Before the week following Brennen’s 12th birthday, everything appeared to be running smoothly.
After complaining of a stomachache, he became homesick with strep throat. The physicians found out that his descending aorta had ruptured, which was the real cause of his stomachache.
“They worked hard; they did everything they could,” Goody remarked.
Medical staff was constantly rushing in and out with blood transfusions in an attempt to mend his broken vessels, but they were unsuccessful. No matter how much they tried to fix it, it would eventually fall apart again.
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Two younger siblings, parents, grandparents, and a dog were left behind when Brennen passed away on June 13, 2023. The people closest to him are now trying to carry on his legacy.
He placed a premium on being a good person and helping others. “I simply wish I could be able to convey that to my children,” his mom said.
At North Kansas City’s Macken Park, the family hosted the inaugural “Brendan’s vEDS Walk” on Saturday morning from 10 a.m. to 3 p.m. A total of eighty-plus individuals turned out to support vEDS research.
A physician at Texas Children’s Hospital is studying VEDS in youths, and as of Saturday night, almost $3,000 has been collected to support his work.
Witnessing the overwhelming number of individuals who came to help walk her grandson brought Wendy Mahan to tears.
People are doing this in his honor because he simply didn’t care about himself. All the while, my heart was so full of emotion.
Brennen died from the same genetic disorder that she has. With any luck, this charity walk will become a yearly tradition, and the money raised will help find a cure.
“It’s a terrible, terrible condition,” Mahan continued, “and it’s incredible to think it will help someone avoid the heartbreak of losing a child.”
That is, after all, the wish of her grandson.
Translucent skin, big, deep-set eyes, hypermobility, and bruising are common symptoms of vEDS.
